1. What is the long-term outlook for a baby born with an omphalocele?

Problems in the future often depend on:

  • the size of the omphalocele
  • if there was a loss of blood flow to part of the intestine or other organs
  • the extent of other abnormalities

Babies who have damage to the intestines or other abdominal organs may have long-term problems with digestion, elimination, and infection.

Consult your baby’s physician regarding the prognosis for your baby.

2. What are the chances that I could have another baby with an omphalocele?

Isolated omphalocele (when omphalocele is the only finding) is not believed to run in families, and the chances for another affected baby are small. If the baby has a chromosomal abnormality, the chance for another affected baby is 1% or the maternal-age risk, whichever is higher. If the omphalocele is part of a genetic syndrome, the chances for another affected baby could be as high as 50%, depending on the condition. Your geneticist will help determine your specific odds. Source: Morgan Stanley Children’s Hospital

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