Welcome to Omphalocele.net!
Welcome to Omphalocele Awareness/Mothers of Omphaloceles! We hope you use this site as a reference tool, a way to find support and most of all, to provide encouragement to you. You may be expecting a child with this condition, be connected with a child who was born with an omphalocele, or may yourself have had one when you were born. We welcome you to our site. The site serves as a support group, a source of non-technical information, and a gateway into the personal websites of many parents of omphalocele babies and kids. The information contained in this site is referenced from various medical websites and member experiences. It is not meant to contradict any information you may receive from your personal physician and should not be used to make decisions about surgical treatment.
Omphalocele.net is a place to connect and share with everyone that knows anyone born with an omphalocele.
Here you will find links to other sites about related topics, frequently asked questions (FAQs) and their answers. We have included a list of questions you may want to ask your physician. Our stories have been submitted by people just like you and we are here so you know you aren’t alone. But most importantly we have a support group EmailMoos that we invite you to join. Here you will meet people in all stages of the “O” experience including adults who were born with an omphalocele. When you join our support group you will see many miracles and come to know how strong, brave and delightful “O” babies are.
Over the past years, we’ve supported thousands of parents, caregivers, grandparents, siblings, and friends of children born with an omphalocele, believing that every baby with an omphalocele needs a chance at life. You can say we’re “Pro-O”! There are many adult ‘O’ survivors on EmailMOOs who can testify to this.
Please peruse the links and pages of this site to find knowledge and ways to gain support. Please consider purchasing an Omphalocele Awareness silicone bracelet, key chain, or logo support ribbon magnet to help fund our group. Follow the link to join EmailMOOs and find others who have walked your path before.
Remember, you’re not alone and we are so glad you have found us and hope you find the support and encouragement you need!